Been a few anniversaries or dates of notes, recently including Hampton Court’s dry moat being wet and frozen! Similar to 10 years ago when I was getting my independence back on the bike, and terrifying Sara as I had no concept of how unwell and different I was!
Didn’t freeze at least that year, though I was very cold! Which comes from being unwell/fragile I guess!
And Claudia had her 16th birthday, which reminded me of Claude and with that the various stories he told.
It’s my 10 year anniversary, that I didn’t quite make it to work and well life changed from then on.
I didn’t realise for probably a good year by how much, mainly as until you try some thing and it’s harder to do or not doable anymore. And the mind is very good a glossing over problems even brain injuries!
It’s not been a linear process I very much needed help be that Sara or the local Headway group who got me back into the NHS system so I could get rehabilitation and simply learn and meet others like myself.
But today I shall be fairly self centred and have cake!
One of the things that change some 10 years since my brain injury see below! Is that cycling which was always a hobby/leisure activity also became my way of travelling about as I don’t cope with busy public spaces well, and so public transport is hard or just not doable!
I was interviewed by Wheels for Wellbeing recently and talked about this and my forthcoming visit to the Disablity Expo where my only realistic way to get their was via bike, as I can’t use the Tube/DLR I did try once, never again!
The 3 or so hours at the event where the most exhausting for lots of reasons mainly overloaded ie too much noise from different places, and movement and so on being the delicate wee flower I am!
Did see some fun bits of kit though with wheelchair attachments and recumbent bikes!
This weekend was coronation weekend or excuse for a street party! Wasn’t as engaging on tv as the Queens funeral but historic never the less and had a lovely street party next day, with much better weather!
But today went to Parliament for the reading ie some speeches by Chris Bryant MP who is the man (mosty) who is pushing this forward. While I wanted to be their as, we as group tend to let stuff happen for us than been with us?
It was hugely stressful and exhausting! Every one was lovely I even managed to recognise folks! But oh I am paying for it!
I was amazed how easy it was to visit just some airport type put stuff in a tray and get patted down, as my MP said well it is your building! I did enjoy having a wander around briefly at the end.
I also got a cup as well I wanted a treat as I felt proud I’d managed it, I did twitch a fair bit on the train home, and have generally felt exhausted but I’m proud that I managed it, and I enjoyed parts/felt I should in other parts, but good day nonetheless!
Late last year I reduced my days working down again to two, which seems to be working in that I’m not fatigued constantly and am managing to do stuff.
Such as though not limited to going for a night gravel ride timed to meet the road gang at the pub. I do love night riding but it is hard work cognitively and physically, and as such I’ve only managed maybe one or two every year before this.
So this is huge improvement and well enjoyment and well a success so I’ll take that!
It’s been a shocking bad month, I’m not a fan of Christmas at the best of times but this month has been awful for various reasons!
So decided that I’d give the light show at Hampton Court a go, as I’d wanted to go last year but though it would be too much!
I loved it, was in places rather challenging in that my broken vestibular system doesn’t like low light and odd lights so a walk around and though the Palace with lights was always going to be hard work!